In The Shadow of Schizophrenia

I remember Grandpa Larry’s visits remarkably vividly. He would lumber into the house hunched over, grunting loudly and reeking of cigarettes. He was unshaven and haggard, with wild grey-black hair streaking out horizontally from the sides of his head. He would rock and turn uncomfortably until he could find a chair, then once seated would begin rhythmically swaying back and forth. He spoke in a flat, rough voice. He had considerable difficulty getting words out.

Grandpa Larry rarely made eye contact, which was a good thing. If he did, you would want to look away. His expression verged between hollow detachment and frenzied searching, as if he was trying to escape from something he couldn’t see.

Once the spectacle of his arrival had passed, it was time for his injection. My parents would drag him into the bathroom and give him a depot injection of Thiothixine, a powerful antipsychotic.

The strangest thing of all? Underneath the madness, he was incredibly sweet.

He would drawl out my name and the names of my siblings as we’d bashfully enter the room. He didn’t quite look at us, but he’d raise his head and look to the side. We would tell him about how school was going, our favorite movies, favorite colors. He would grunt and nod and shake around, utterly respectful of my little fourth grade self. I usually couldn’t quite make out exactly what he was saying, but it didn’t matter. I knew what he was trying to say.

Over the years, I had a lot of questions about Grandpa Larry. Who was this wild creature, my mom’s dad, the man in whose body resided roughly 25% of my DNA? I knew that he had something called schizophrenia, something that no one else I knew had. I knew we didn’t see him very often. And I heard a lot of stories about him.

Stories about the old Grandpa Larry, before his ‘break,’ abounded. They told of a handsome, brilliant athlete who graduated Columbia University in three years and Columbia Law School in two. A man with an eidetic memory who would play bridge with his law professors because he didn’t need to study. Legend had it that people had wanted to run him for mayor of New York.

Then there were other stories, the ones describing his swan dive off the cliff of sanity. How he was abused by my great-grandfather. How he was forced to marry my grandmother after it was discovered that they had been sleeping together out of wedlock. How the birth of my mother led to him losing control of his thoughts, his mind, his life. He started to suspect aloud, to his colleagues at the posh law firm that he had just been hired at, that the FBI was tracking him and trying to poison him. He was fired.

My grandmother, with a new baby and a delusional and psychiatrically unstable husband, was forced to institutionalize him to protect my mother. My mom met her dad when she was twenty-five.

I thought about him a lot as a kid. Sometimes I would talk to myself – did I have schizophrenia? Could I ever turn into him? If I did, would I even be able to recognize it? Was schizophrenia hereditary? Were there triggers that could be avoided? Was there some age at which I was safe? Or would the specter of mental disease always be there for me, lurking, waiting for me.

I never got to know my grandpa that well. As I grew up his body began to deteriorate. He died when I was in high school.

It was a sparsely attended funeral, mostly just family. But a few friends came, including a man named Sidney Zimmer. He was the owner of the Hotel Belleclaire, on the upper west side of Manhattan, where my grandpa had been allowed to live (at a reduced rent) for many years.

My parents thanked him profusely for his kindness over the years, for allowing a tenant like him to stay. He smiled and nodded. That he had driven all the way out to Long Island for the funeral of his longstanding psychiatric tenant was fairly astounding to me.

Before he left, he reached into his pocket, pulled out a pen, and handed it to me. It was from Hotel Belleclaire, with a richly stylized “HB” in red and black on the outside of the pen. “Think of your grandpa when you use this pen,” he said.

His funeral was thirteen years ago. I never took the pen out of my jacket pocket. It’s still there, zipped safely away, always within reach.

The pen is a sort of totem for me. It’s comforting to hold it, out of everyone’s view, and be reminded of my grandpa. I think about his legacy of struggle and hardship and foiled aspirations. About how kind he was to me. And about how lucky I am to be sane.

But it also reminds me of Sidney Zimmer, a man with a remarkable capacity for good. It reminds me that people with compassion are out there, trying to help people like my grandpa. Holding that pen, I like to think that I could be one of those people too.

8 thoughts on “In The Shadow of Schizophrenia”

  1. Ben- a beautiful tribute to man you did not know well but who loved you and was proud of you despite the severity of his illness. Your grandfather’s essential humanity was not obliterated by the enormity of his suffering. His departure from sanity (and my life at age 2) changed the course of my family’s life. It headed me towards psychiatry to try and understand the catastrophe that had befallen us.. May the gift of your health and wellbeing help fulfill the promise that he was never able to achieve in this world. And may Sidney Zimmer’s extraordinary kindness and compassion be a light for us all.

  2. I was moved to tears by this piece
    I have a Son who is autistic and always wonder if anyone will ever remember him after we are gone

  3. Ben,
    I was impressed with your story and the depth of emotions and courage you demonstrated with your article!
    It is an amazing reflection that is fulfilling and brings lot of thoughts to people and colleagues of yours who have experienced similar life story!!!
    Schizophrenia is one of the most disabling illnesses that humanity has yet to understand and help!
    Medical world fears psychiatry as a discipline also because of illnesses such as Schizophrenia…a disorder that has a paralysing effect towards any medical practitioner due to its profound severity and the impotence that is felt by treating clinicians!
    I wish I see this awful disorder ‘defeated’ within our life times!
    Again, excellent article and yes, genes are genes, and life is life, so….not only the genes determine who we are what we will become!!!
    Regards
    Andre

  4. Re: “How the birth of my mother led to him losing control of his thoughts, his mind, his life.”

    Stress and sleep deprivation do not cause schizophrenia. It is not even clear that cannabis causes schizophrenia. At most, the extra stress would have precipitated the inevitable. It is possible that the extra demands unmasked existing impairment.

  5. Thanks Ben. I really love your humanity and biology to accept and and appreciate your crazy Grandpa.I am a 74 year old psychiatrist and also had an unusual Grandpa,but he meant a lot to me too.
    Best wishes Peter Churven Australia

  6. Hi Ben,
    We don’t really know each other but I’m a long standing friend of Lillian.
    She means a lot to me!
    We met I was 19 years old…
    My oldest brother was schizophrenic most of his life and died at age 64 a few years ago.
    My second brother was probably schizophrenic too and died last year at age 65.
    It was never very clear to me if my 2nd brother was also sick .
    Hard to admit 2 out of 4 siblings had this disease.
    Your story brings humanity in a world where we tend to forget about the meaningful values of our existence.
    Thank you! Sheilla Sklar

  7. Ben, great read and insight. I am Sidney’s grandson and found this article from google. He is as you said “ remarkable capacity for good”, I look forward to bringing up this story to him.

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